Marking last week's second anniversary of my stroke caused me to overlook the fact that it was also the first birthday of this blog.
If you've been with me all through that time, you'll know that The Warrior was born as a means of helping me mark my first strokeversary and as a way to get my message about stroke education across to more people.
It's certainly done that. As of today (December 23 2015) this blog has had 5,901 page views; not an enormous number and certainly nowhere near enough for me to make any money out of blogging, but proof that plenty of people are interested enough in my story to seek me out.
As with every writer, I do enjoy knowing that people read my stuff, but that's been part of me ever since I got my first byline in the Tamworth Herald in March 1986.
In 2016, you'll also be able to see me. I'm putting to good use knowledge gleaned from those who know far more about the technical side of social media than I do and although I keep coming up against stumbling blocks (partly of my own making, I must admit), I will be on video through Periscope and YouTube in the new year. After all, every other journalist I know seems to have to do videos of their stories these days.
I am also keen to become involved in a new support group for stroke-survivors and their carers which a friend of mine is hoping to get off the ground. I cannot say too much, but anyone who knows The Warrior will know that improving the quantity and quality of support and help for those who have to live with and deal with us strokies on a daily basis is one of my passions.
Plenty to look forward to in 2016, then. But, of course, my mantra is that there is plenty to look forward to in every day if only you go and look for it. That's especially true tomorrow, Christmas Eve. There's whiskey to drink to celebrate Mrs Warrior's mother's birthday. And I've still got Christmas presents to buy.
Wednesday, 23 December 2015
Wednesday, 16 December 2015
Strokeversary thoughts
How should one mark the anniversary of an event which nearly killed you and in any event, changed your life irrevocably?
Unsurprisingly, it's a question which stroke-survivors ask ourselves and our fellow strokies a lot. Do we mourn for the life we lost on that day and the old version of us which went with it? Or do we celebrate the fact that we survived to tell the tale and enjoy all the things we have done with our 'new' lives since then?
Do we continue treating each new day as a blessing, 24 hours to be enjoyed and appreciated as much as we can? Do we look back in anger and ask 'why me?' Or do we, like Oasis, decide not to take that path and instead ask "Why not me, I'm no different to anyone else'?
Of course, there's a reason for all this philosophical musing. Today, Wednesday December 16 2015, is the second anniversary of the afternoon when, as I've said a million times since, I suffered a stroke while crossing a busy road near my home in Tamworth, collapsed and was nearly run over by a 47-seater bus.
I pass the scene of the crime almost every day, so I long since stopped suffering from flashbacks about it, which I know trouble many strokies. But it's inevitable that this day will cause me to stop and think. What was I doing? Where had I been? Did I have any warning? (Answer - no). Is there anything I would have done differently? (Answer - no. There are two routes I could have taken from Tamworth railway station to Warrillow Towers and taking the other route would only have seen me collapse on a busier road).
And the next few weeks will, I'm sure, be full of memories. Being rushed to hospital. Spending four weeks there over Christmas and New Year. Being paralysed for a while. Starting the painful process of re-learning how to walk and talk and write and generally survive. Being thrown into the world of the disabled person. All the inevitable questions about my future (many of which are still unresolved two years later).
It's been an extraordinary journey; it still is and I don't see it stopping any time soon. One full of ups and downs, one which is unpredictable from one day to the next. I wish I wasn't facing up to the prospect of never doing full-time work again - I'm far too young for that. I wish being a strokie didn't sometimes seem to define my life. I wish I could walk properly. I wish I wasn't brain-damaged. I wish I didn't have to take blood-thinners, watch my alcohol intake, be on a seemingly never-ending treadmill of medical appointments. I sometimes wish people didn't ask me "How are you" and mean it. I'm fine, by the way. I got up this morning and I'm breathing; that'll do.
But I'm grateful that I wake up every morning to face another day. I'm grateful for all the new experiences I've had, for all the wonderful people I've met and continue to meet, both virtually and in real life; I'm grateful for whatever put me on the long road to trying to qualify as a counsellor, I'm grateful, as so many strokies say, for a second chance at life.
So I won't be miserable today; I won't mourn my old life. Yes, I'll think about the events of December 16 2013 and immediately after but I've moved on to my new life. I might even take the advice of one of my best strokie friends who said the best way to mark the day was 'get a few bottles of cheap wine and just get p***ed' (as much as I'm allowed to, given my tablets and my streaming cold).
But, like Oasis, I definitely don't see the point of looking back in anger. It's happened, there's nothing I can do about it, I just have to get on with whatever life throws at me. And Warriors tend to be pretty good at that.
Unsurprisingly, it's a question which stroke-survivors ask ourselves and our fellow strokies a lot. Do we mourn for the life we lost on that day and the old version of us which went with it? Or do we celebrate the fact that we survived to tell the tale and enjoy all the things we have done with our 'new' lives since then?
Do we continue treating each new day as a blessing, 24 hours to be enjoyed and appreciated as much as we can? Do we look back in anger and ask 'why me?' Or do we, like Oasis, decide not to take that path and instead ask "Why not me, I'm no different to anyone else'?
Of course, there's a reason for all this philosophical musing. Today, Wednesday December 16 2015, is the second anniversary of the afternoon when, as I've said a million times since, I suffered a stroke while crossing a busy road near my home in Tamworth, collapsed and was nearly run over by a 47-seater bus.
I pass the scene of the crime almost every day, so I long since stopped suffering from flashbacks about it, which I know trouble many strokies. But it's inevitable that this day will cause me to stop and think. What was I doing? Where had I been? Did I have any warning? (Answer - no). Is there anything I would have done differently? (Answer - no. There are two routes I could have taken from Tamworth railway station to Warrillow Towers and taking the other route would only have seen me collapse on a busier road).
And the next few weeks will, I'm sure, be full of memories. Being rushed to hospital. Spending four weeks there over Christmas and New Year. Being paralysed for a while. Starting the painful process of re-learning how to walk and talk and write and generally survive. Being thrown into the world of the disabled person. All the inevitable questions about my future (many of which are still unresolved two years later).
It's been an extraordinary journey; it still is and I don't see it stopping any time soon. One full of ups and downs, one which is unpredictable from one day to the next. I wish I wasn't facing up to the prospect of never doing full-time work again - I'm far too young for that. I wish being a strokie didn't sometimes seem to define my life. I wish I could walk properly. I wish I wasn't brain-damaged. I wish I didn't have to take blood-thinners, watch my alcohol intake, be on a seemingly never-ending treadmill of medical appointments. I sometimes wish people didn't ask me "How are you" and mean it. I'm fine, by the way. I got up this morning and I'm breathing; that'll do.
But I'm grateful that I wake up every morning to face another day. I'm grateful for all the new experiences I've had, for all the wonderful people I've met and continue to meet, both virtually and in real life; I'm grateful for whatever put me on the long road to trying to qualify as a counsellor, I'm grateful, as so many strokies say, for a second chance at life.
So I won't be miserable today; I won't mourn my old life. Yes, I'll think about the events of December 16 2013 and immediately after but I've moved on to my new life. I might even take the advice of one of my best strokie friends who said the best way to mark the day was 'get a few bottles of cheap wine and just get p***ed' (as much as I'm allowed to, given my tablets and my streaming cold).
But, like Oasis, I definitely don't see the point of looking back in anger. It's happened, there's nothing I can do about it, I just have to get on with whatever life throws at me. And Warriors tend to be pretty good at that.
Wednesday, 9 December 2015
So what do you know about your brain?
What do you have stuck to the side of your fridge? A calendar? A parish newsletter? A fridge magnet or six? I've got all of the above but perhaps the most important thing is a factsheet produced by Headway, the brain injury association.
It's six pages of facts you probably didn't know about that thing which sits inside your skull and controls the various different parts of our daily lives.
For instance, the brain weighs about 3lb or just under 1.5kg. It's made up of around 100 billion nerve cells and even more support cells which nourish the nerve cells. And if those two facts don't make you think, did you know that the brain has the texture of a blancmange? (I hate blancmange, lol...).
When the brain is damaged in any way, by a stroke or some other form of traumatic head injury, the effect is similar to that of vigorously shaking a plate of blancmange; it shears and tears, disrupting the pathways of communication between those billions of cells. That's possibly why I've heard people say that having a stroke is like having a nuclear bomb go off in your head; it is not unlike the effect a nuclear bomb would have if it were to go off on dry land (and in my case, that's exactly what it felt like).
Obviously, this can be devastating; it's why some stroke-survivors lose the ability to walk, speak, write, read, see......It's also why recovery can take so long. All of those billions of cells can eventually reconfigure themselves but it can take years; someone once described it to me as like trying to get to London from the West Midlands but the M1 is shut; you have to go down the A5 and you haven't used the A5 for 50 years, so you have to look at every road sign, check your map, reconfigure your satnav and it all takes ten times as long.
Consequently, some recoveries are quicker than others. Just a week short of my second anniversary, I probably look as if I've recovered more or less completely from a physical standpoint. My brain, that 3lb lump of blancmange inside my skull, will tell you otherwise. I've been reading the latest report from my consultant about some tests I had done on my brain a couple of months ago. Obviously, a fair amount of it is written in complex medical language, but I'm smart enough to be able to understand phrases such as 'likely permanent deficit."
But a lot of stroke-survivors don't accept the medical view that once you've reached a certain level of recovery, that's it. We believe that with constant mental and physical stimulation, we can keep recovering. I know people who are 18 years post-stroke and still think they are getting better, that those billions of cells are reconfiguring themselves.
For me, there is no other way to think (even when Emily is being brutal with me, lol). Otherwise, I might just as well sit in a chair and fester for however long the medical profession thinks I'll live. It's hard at times, I do let myself down at times (don't I, Emily?) but I didn't get that Warrior tattoo for nothing; and if I'm going to have to live with that image of a blancmange inside my skull for the rest of my life, I might as well be trying to put that broken blancmange back together.
It's six pages of facts you probably didn't know about that thing which sits inside your skull and controls the various different parts of our daily lives.
For instance, the brain weighs about 3lb or just under 1.5kg. It's made up of around 100 billion nerve cells and even more support cells which nourish the nerve cells. And if those two facts don't make you think, did you know that the brain has the texture of a blancmange? (I hate blancmange, lol...).
When the brain is damaged in any way, by a stroke or some other form of traumatic head injury, the effect is similar to that of vigorously shaking a plate of blancmange; it shears and tears, disrupting the pathways of communication between those billions of cells. That's possibly why I've heard people say that having a stroke is like having a nuclear bomb go off in your head; it is not unlike the effect a nuclear bomb would have if it were to go off on dry land (and in my case, that's exactly what it felt like).
Obviously, this can be devastating; it's why some stroke-survivors lose the ability to walk, speak, write, read, see......It's also why recovery can take so long. All of those billions of cells can eventually reconfigure themselves but it can take years; someone once described it to me as like trying to get to London from the West Midlands but the M1 is shut; you have to go down the A5 and you haven't used the A5 for 50 years, so you have to look at every road sign, check your map, reconfigure your satnav and it all takes ten times as long.
Consequently, some recoveries are quicker than others. Just a week short of my second anniversary, I probably look as if I've recovered more or less completely from a physical standpoint. My brain, that 3lb lump of blancmange inside my skull, will tell you otherwise. I've been reading the latest report from my consultant about some tests I had done on my brain a couple of months ago. Obviously, a fair amount of it is written in complex medical language, but I'm smart enough to be able to understand phrases such as 'likely permanent deficit."
But a lot of stroke-survivors don't accept the medical view that once you've reached a certain level of recovery, that's it. We believe that with constant mental and physical stimulation, we can keep recovering. I know people who are 18 years post-stroke and still think they are getting better, that those billions of cells are reconfiguring themselves.
For me, there is no other way to think (even when Emily is being brutal with me, lol). Otherwise, I might just as well sit in a chair and fester for however long the medical profession thinks I'll live. It's hard at times, I do let myself down at times (don't I, Emily?) but I didn't get that Warrior tattoo for nothing; and if I'm going to have to live with that image of a blancmange inside my skull for the rest of my life, I might as well be trying to put that broken blancmange back together.
Wednesday, 2 December 2015
Supermarket stress
I had a message this week from a fellow-strokie who told me that last week's blog made her laugh out loud. In a good way, obviously.
Well, it's certainly my intention to cheer people up with what I write, but that's the first time in nearly a year that I've had a reader say that. I'm not quite sure what she'll make of this week's effort.
I've mentioned previously about the mood-swings which can afflict stroke-survivors; and I've often commented on how we don't cope well with stress. In my own case, if I get too stressed, I get thunderous headaches and a feeling that the top of my head is going to explode.
Come with me, then, to Monday morning this week and my local branch of a well-known German discount supermarket. For reasons I won't trouble you with, we weren't able to do the weekly shop on Saturday or Sunday so I ventured out on my own to start the week (No, don't suggest online shopping......)
I was there by 8.30am because busy places trouble me (another effect of strokie-dom) and was doing pretty well until I got to within five yards of the till area - at which point I realised I'd come out without any money or any other means of paying. We all do it, of course - I once had to wait on a petrol-station forecourt while Mrs W ran home to get some cash to pay for £40 of unleaded - but strokies worry more than others about such things.
Happily, because Warrillow Towers is only over the road and most of the staff know me, I was able to park the trolley somewhere safe inside the store, 'sprint' home (OK, I don't sprint...) collect my debit card and pay for the goods.
At which point, I thought my stress was over. Until I got to the car, loaded the bags in the boot, got in the driver's seat, switched on the engine, put the car into reverse and moved two inches backwards. At which point I heard a loud banging noise behind me.
Now having just gone through a difficult and expensive insurance claim after a disagreement with a bollard in a hospital car park, noises like that worry me. So I looked round and saw an elderly gentleman banging fiercely on the boot of my car. I recognised him from earlier; I'd seen him in the store getting into arguments with other customers and demanding that the staff get out of the way of his wife, who was using two walking sticks. I'd describe him as one of those people who thinks his wife is the only disabled person on the planet and that the world revolves around her.
I wound down the window and, trying to keep my cool, asked him to stop banging and pointed out that it wasn't terribly safe to walk two inches behind a reversing car if you have trouble walking. He replied rather fiercely, wondering again if I knew that his wife was on sticks and couldn't walk too quickly. At which point, I'm afraid I lost it.
I shouted that I'd seen him being argumentative in the store, that I was also disabled, that I had a Blue Badge and was entitled to it and that if he continued like that, he was asking for trouble. I'm afraid I might have sworn under my breath. He certainly swore under his.
Now I wasn't going to have a physical argument with two elderly disabled people in a supermarket car park, so I floored the accelerator and left the scene. But the incident troubled me all day. I'd done nothing wrong; yet had I over-reacted? I had one of those thunderous headaches all morning and couldn't concentrate on some college work. I was so tired that I fell asleep for an hour in the afternoon.
It wasn't a nice incident and it's worried me all week. I shall certainly avoid him in future. And it shows how fragile a strokie's emotions can be. Previously, I'd have shrugged it off. Now, I'm finding that difficult.
Comments, anyone?
Wednesday, 25 November 2015
Sometimes even warriors need help to re-discover that positive charge
Positive mental attitude is something I talk about a lot in terms of stroke rehabilitation: if you don't believe you'll improve and keep improving, then you won't. If you do, you will. And if you don't do something about it, you certainly won't.
And part of the thinking behind calling this blog 'The Warrior' was to reflect that desire for positive mental attitude. Warriors don't stop fighting, do they?
This week, however, I've struggled to live up to my own words. Domestic life has been stressful for various reasons and some home-improvement work has massively disrupted the normal daily schedule of life at Warrillow Towers.
The first really cold spell of the winter hasn't helped; warriors aren't supposed to sit inside their castles with thick thermal gloves on and wearing two jumpers because they are freezing cold. But being outside in the cold, wind and rain isn't good for me, my blood-thinning tablets make me feel cold anyway and someone needed to be in the house to supervise the home improvements.
So by Monday evening, this particular warrior was seriously lacking in PMA. But as always, my fellow college students in counselling skills acted as a sounding-board for me to let off steam and a brutal session in the gym on Tuesday with #breathebalancebeactivatedEmily left me realising just how far I have come since December 16 2013; after all, focusing on what you can do, not what you can't do, is the definition of PMA, isn't it?
Tuesday evening, however, saw another setback. The gym session wore me out more than I had imagined and I let it trouble me; which brought bad thoughts to the fore about our ongoing financial difficulties and my own future in general. I needed a boost and this morning (Wednesday) I got one; well, two, in fact. First, my good friend Mel Eves, who some of you may remember from his previous life as a professional footballer in the 1970's and '80's with Wolverhampton Wanderers, came to visit me at Warrillow Towers. Mel is an expert in sports performance and on the need for elite sportsmen to be 'in the zone' when they are performing. Positive mental attitude is key and if you are interested, I recommend you check out his website at www.wellnesswizard.co.uk.
An hour with Mel, working on my mental approach to my thoughts and life in general, lifted my mood. Then, I had a visit from a networking friend, Amanda Goldston. To quote a testimonial I read about her recently, Amanda is the ''MAD Woman of MAD Woman Academy helping Magnificent, Awesome, Daring Women to clear away blocks to money." She talks to men, as well, I'm pleased to say and she was visiting to deliver some relaxation tapes which I am hoping can be used to help fellow stroke-survivors.
But we also began talking about a project for which she volunteers called Walking For Health (walkingforhealth.org.uk). Run by the Ramblers and Macmillan Cancer Support, it provides thousands of walks of varying degrees of difficulty to help people improve their health. There are several free walks (the magic word there is free, lol....) within a few miles of Warrillow Towers and I may well try one soon. When and if, I do, you can be sure I'll blog about it. And I go into the next seven days with a much more positive attitude.
And part of the thinking behind calling this blog 'The Warrior' was to reflect that desire for positive mental attitude. Warriors don't stop fighting, do they?
This week, however, I've struggled to live up to my own words. Domestic life has been stressful for various reasons and some home-improvement work has massively disrupted the normal daily schedule of life at Warrillow Towers.
The first really cold spell of the winter hasn't helped; warriors aren't supposed to sit inside their castles with thick thermal gloves on and wearing two jumpers because they are freezing cold. But being outside in the cold, wind and rain isn't good for me, my blood-thinning tablets make me feel cold anyway and someone needed to be in the house to supervise the home improvements.
So by Monday evening, this particular warrior was seriously lacking in PMA. But as always, my fellow college students in counselling skills acted as a sounding-board for me to let off steam and a brutal session in the gym on Tuesday with #breathebalancebeactivatedEmily left me realising just how far I have come since December 16 2013; after all, focusing on what you can do, not what you can't do, is the definition of PMA, isn't it?
Tuesday evening, however, saw another setback. The gym session wore me out more than I had imagined and I let it trouble me; which brought bad thoughts to the fore about our ongoing financial difficulties and my own future in general. I needed a boost and this morning (Wednesday) I got one; well, two, in fact. First, my good friend Mel Eves, who some of you may remember from his previous life as a professional footballer in the 1970's and '80's with Wolverhampton Wanderers, came to visit me at Warrillow Towers. Mel is an expert in sports performance and on the need for elite sportsmen to be 'in the zone' when they are performing. Positive mental attitude is key and if you are interested, I recommend you check out his website at www.wellnesswizard.co.uk.
An hour with Mel, working on my mental approach to my thoughts and life in general, lifted my mood. Then, I had a visit from a networking friend, Amanda Goldston. To quote a testimonial I read about her recently, Amanda is the ''MAD Woman of MAD Woman Academy helping Magnificent, Awesome, Daring Women to clear away blocks to money." She talks to men, as well, I'm pleased to say and she was visiting to deliver some relaxation tapes which I am hoping can be used to help fellow stroke-survivors.
But we also began talking about a project for which she volunteers called Walking For Health (walkingforhealth.org.uk). Run by the Ramblers and Macmillan Cancer Support, it provides thousands of walks of varying degrees of difficulty to help people improve their health. There are several free walks (the magic word there is free, lol....) within a few miles of Warrillow Towers and I may well try one soon. When and if, I do, you can be sure I'll blog about it. And I go into the next seven days with a much more positive attitude.
Wednesday, 18 November 2015
An unexpected start to my day
Like too many of us these days, the first thing I do when I come downstairs in the morning is check my phone; text messages, emails, Facebook, the ESPN Sportscenter website (don't ask....).
Only when that is done do I open the curtains, feed the cat and the dog and do all my other early-morning tasks.
Often, the only thing of importance is another rude email from the bank or a message from one of my strokie friends on the west coast of the USA. On Friday, however, one message really shook me out of half-sleep.
It was from a (necessarily anonymous) friend who said that two people very close to her had been forced to deal with stroke in the last couple of weeks. One involved someone suffering a fatal stroke, another person had been left paralysed down their left side (as I was, of course).
My friend was seeking advice, help, details of support groups and so on; it's a scenario I come across all too often. Stroke hits completely unexpectedly and often, the person involved, their family and friends haven't a clue where to turn.
The NHS does its best with limited resources but their focus is on the person who has had the stroke, not their family and friends. Yet these people also find their lives turned upside down in an instant. They may have to give up work/reduce their hours to care for someone, so finance becomes a major issue; they almost certainly don't know where to go for help and advice; they don't know what is going to happen in the long term; they probably don't know what caused the stroke; they don't know what the after-effects (which can be many and varied - every single stroke is different) will be. The stress is enormous. And the one thing survivors are supposed to avoid is stress.
They need someone to talk to and stroke-support groups for carers and survivors are crucial. So often, I come across people who ask if this or that symptom is normal post-stroke - whether it's depression, mood-swings, sensitivity to noise, forgetfulness, fatigue or any one of plenty more. Too many people aren't told what will happen, when it will happen, whether the survivor will get better and how quickly and so on.
Joining support groups or just talking to survivors and carers is an important part of the rehabilitation process. Yet funding for groups like this is, unsurprisingly, not easy to find. Which is why blogs like this and the work so many survivors and carers do in educating others are so important.
I love writing this blog every Wednesday. I'd do it even if no-one was reading it. But messages like that I received on Friday make me realise why I do it.
Only when that is done do I open the curtains, feed the cat and the dog and do all my other early-morning tasks.
Often, the only thing of importance is another rude email from the bank or a message from one of my strokie friends on the west coast of the USA. On Friday, however, one message really shook me out of half-sleep.
It was from a (necessarily anonymous) friend who said that two people very close to her had been forced to deal with stroke in the last couple of weeks. One involved someone suffering a fatal stroke, another person had been left paralysed down their left side (as I was, of course).
My friend was seeking advice, help, details of support groups and so on; it's a scenario I come across all too often. Stroke hits completely unexpectedly and often, the person involved, their family and friends haven't a clue where to turn.
The NHS does its best with limited resources but their focus is on the person who has had the stroke, not their family and friends. Yet these people also find their lives turned upside down in an instant. They may have to give up work/reduce their hours to care for someone, so finance becomes a major issue; they almost certainly don't know where to go for help and advice; they don't know what is going to happen in the long term; they probably don't know what caused the stroke; they don't know what the after-effects (which can be many and varied - every single stroke is different) will be. The stress is enormous. And the one thing survivors are supposed to avoid is stress.
They need someone to talk to and stroke-support groups for carers and survivors are crucial. So often, I come across people who ask if this or that symptom is normal post-stroke - whether it's depression, mood-swings, sensitivity to noise, forgetfulness, fatigue or any one of plenty more. Too many people aren't told what will happen, when it will happen, whether the survivor will get better and how quickly and so on.
Joining support groups or just talking to survivors and carers is an important part of the rehabilitation process. Yet funding for groups like this is, unsurprisingly, not easy to find. Which is why blogs like this and the work so many survivors and carers do in educating others are so important.
I love writing this blog every Wednesday. I'd do it even if no-one was reading it. But messages like that I received on Friday make me realise why I do it.
Thursday, 12 November 2015
Camera-shy? Me? No, of course not.....
At a networking meeting I attended this morning, someone said that most people's biggest phobia surrounds having to speak in public (Obviously, the speaker, who is a life coach, wasn't one of them.)
Public speaking, either to an audience, into a microphone or into a TV camera, has never bothered me. I was sports editor of the student radio station at Loughborough University in the mid-80s, I've done countless presentations to business networking meetings and since my stroke, I've appeared on radio and TV talking about my experience.
I've even done presentations in the nude to entirely naked audiences at naturist events. After all, they do say one of the best ways to combat public-speaking phobia (is there a word for it?) is to imagine that the audience is nude.
Consequently, when I get the chance to educate an audience anywhere about stroke, I generally take it. I was contacted recently by Megan Trowell, production co-ordinator for a new project from the Stroke Association called "My Stroke Guide.' It's intended as (I quote...) "a digital self-management tool to support people in their recovery following a stroke."
Available on mainstream digital platforms, it will feature information on how to deal with the effects of stroke, advice and signposting on key issues that people face after stroke, goal-setting tools and graphs for individuals, memory and concentration games, peer-to-peer support, online forums and an extensive video library.
Megan wanted me to tell my story for six of those videos, each dealing with some of the problems that all strokies face and how I have managed (or failed) to deal with them.
Megan and her camerawoman Rochielle spent five hours on Wednesday this week at Warrillow Towers, filming me telling my story and relating my experiences over issues such as headaches, vision problems, fatigue, irritability and the like.
It all went superbly (I think) and I am looking forward to seeing the results. At the moment, because the site is so new, stroke survivors who are interested in the project will get a log-in and an introduction to the site from a member of staff at the Stroke Association who will support them to use it. Therefore, MSG is currently only available to people living within an area where there is a Stroke Association service supported by the local health board or authority and/or the NHS via a contract.
Obviously, the eventual aim is for all stroke survivors to be able to use it but, as always, money will probably be the issue. If and when I hear more, I'll blog about it here.
I must also give my usual quick shout-out to the amazing Emily Smedley. You may recall that last week's session saw me failing dismally to climb on to a platform using my stroke-affected left foot first, then trying and failing to hang a few inches off the ground and being defeated by my poorly left shoulder.
Well, things were a little better this week. I still didn't manage the platform, but I felt slightly more confident in doing both that and trying to hang, while we did plenty of work on my affected visual field; I tried (sometimes successfully!!) to catch a ball and a falling pole using only my left hand.
Throughout it all, I kept thinking (as I have often said here) "no such word as can't" and I will get there, even if it takes a while.
PS - I am indebted to Tarnya Brink, who read this post and has now educated me with the knowledge that the fear of public speaking is called glossophobia.
Public speaking, either to an audience, into a microphone or into a TV camera, has never bothered me. I was sports editor of the student radio station at Loughborough University in the mid-80s, I've done countless presentations to business networking meetings and since my stroke, I've appeared on radio and TV talking about my experience.
I've even done presentations in the nude to entirely naked audiences at naturist events. After all, they do say one of the best ways to combat public-speaking phobia (is there a word for it?) is to imagine that the audience is nude.
Consequently, when I get the chance to educate an audience anywhere about stroke, I generally take it. I was contacted recently by Megan Trowell, production co-ordinator for a new project from the Stroke Association called "My Stroke Guide.' It's intended as (I quote...) "a digital self-management tool to support people in their recovery following a stroke."
Available on mainstream digital platforms, it will feature information on how to deal with the effects of stroke, advice and signposting on key issues that people face after stroke, goal-setting tools and graphs for individuals, memory and concentration games, peer-to-peer support, online forums and an extensive video library.
Megan wanted me to tell my story for six of those videos, each dealing with some of the problems that all strokies face and how I have managed (or failed) to deal with them.
Megan and her camerawoman Rochielle spent five hours on Wednesday this week at Warrillow Towers, filming me telling my story and relating my experiences over issues such as headaches, vision problems, fatigue, irritability and the like.
It all went superbly (I think) and I am looking forward to seeing the results. At the moment, because the site is so new, stroke survivors who are interested in the project will get a log-in and an introduction to the site from a member of staff at the Stroke Association who will support them to use it. Therefore, MSG is currently only available to people living within an area where there is a Stroke Association service supported by the local health board or authority and/or the NHS via a contract.
Obviously, the eventual aim is for all stroke survivors to be able to use it but, as always, money will probably be the issue. If and when I hear more, I'll blog about it here.
I must also give my usual quick shout-out to the amazing Emily Smedley. You may recall that last week's session saw me failing dismally to climb on to a platform using my stroke-affected left foot first, then trying and failing to hang a few inches off the ground and being defeated by my poorly left shoulder.
Well, things were a little better this week. I still didn't manage the platform, but I felt slightly more confident in doing both that and trying to hang, while we did plenty of work on my affected visual field; I tried (sometimes successfully!!) to catch a ball and a falling pole using only my left hand.
Throughout it all, I kept thinking (as I have often said here) "no such word as can't" and I will get there, even if it takes a while.
PS - I am indebted to Tarnya Brink, who read this post and has now educated me with the knowledge that the fear of public speaking is called glossophobia.
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| The Warrior being filmed this week |
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